Having three children, Cole, Madison, and MacGregor who was diagnosed with NF1 shortly after his birth, Bob Schaffer has been a board member of the Children’s Tumor Foundation for over 5 years, he also chairs it’s Public Education Committee.
“The Children’s Tumor Foundation is dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis (NF), the term for three distinct disorders: NF1, NF2 and schwannomatosis.
Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.”
– The Children’s Tumor Foundation
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